That is the best advice i have heard someone else give (I am the Parley founder) Parents know their child better than anyone. If you are not happy with the support and medical service you have given then you have ti speak out, its so important. If it wasnt for me speaking out again like you due totto the ignorance of the medical profession then Abigail would have had to have an even larger operation due to a fault they made during the first one.
Good luck with your future modern technology is always changing so in years to come there might be something new out there that will give her more sight
Hold on to this thought
Please feel free to publicise Parley in Wales, I am trying to get sponsors and donations for Parley to send out marketing to people like yourselves to really promote it.
PM me your addrewss and i will sort some out to keep you going for the time being.
I am so pleased you have found this forum helpful, makes me swell with pride that it is helping and supporting us parents xxx