I would love to introduce my registered charity to you, Parley and thank TheBabyWebsite for this amazing support that will make such a huge difference.
Parley has been set up due to my daughter being born with a rare form of Spina Bifida and tethered cord found at birth. My family searched for information and support groups unsuccessfully which caused pain, heartbreak and our imaginations to take over. Spina Bifida is so rare now that information is so limited especially in my daughters case.
In March 2008 at 8 months old Abigail had major spinal surgery to correct her spine to un-tether her spinal cord and nerves which could have caused paralysis and worse. We were very alone with this and couldn’t talk to anyone who had been through the same procedure. Therefore I decided that I didn’t want anyone else to go through what we had as it puts a huge strain on your lives, friendships, work and day to day life functions.
The charity is a website for all medical conditions so if you have a child born with or who develops a long or short term medical condition, you can go to Parley and find instant websites for specific charities and support groups without having to search the net. If you want to talk to other mums and dads 'in the same boat, then you can contact them here on TheBabyWebsite Parley Forum.
We also have stories for parents and relatives or patients who have been through similar experiences to help those to not feel alone. We have also teamed up with TheBabyWebsite to enable families to meet and talk to other families for support and information.
Abigail has now fully recovered and if it was not for the huge scar on her back you would not know there was a problem. We still have milestones to hit but Abigail walks, talks, sings, dances, runs, jumps and climbs like any other 2 year old if not more.
Please read my Baby Blog
for more information or visit parleyonline.co.uk
We are also looking for parents to share their stories on our website under specific headings so please PM me with your stories if you are happy to have these publicised.
Thank you for all your support and if we only help one person, our goal has been achieved.